4/

"On the days that I decide I don’t have the recovery time or overall energy to take a shower, I give myself a baby wipe bath (which is just wiping myself down with a bunch of baby wipes), apply dry shampoo to my hair, and throw a little cold water on my face."

@3567457b @04c95879 @4183a04c @3a447f2a #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME 

 5/

"Spoon delegation isn’t always about the things you have to get done on your task list. Sometimes it’s about making the decision to put those spoons toward an activity you enjoy for your mental health — even if it means you’re going to be a little smelly — that’s what deodorant and body sprays are for!"

@3567457b @04c95879 @4183a04c @3a447f2a #Spoonielife 
#hiddenillness 
#invisibleillness 
#ChronicIllnesses
#Spoonies 
#Spoonie 

 6/

"But when those plans involve other people, the stress and guilt felt by having to tell them you don’t feel well enough to participate can be overwhelming."

@3567457b @04c95879 @4183a04c @3a447f2a #ChronicIllnesses
#Spoonies 
#Spoonie 

 @0ecd8d1a @3567457b @04c95879 @4183a04c @3a447f2a did you ever manage to get immunoglobulin therapy Tom? 

 @2dbd93a4 @3567457b @04c95879 @4183a04c @3a447f2a No. Never looked for it as would likely be almost impossible to get in Ireland I would imagine. 

 I am forever classing myself as a separate entity. But you are completely correct. The spoon method is the easiest way of describing. Fortunately, or unfortunately, it’s impossible to understand until you are the one unable to move from your bed, get in the shower/bath, eat.. it’s a daily battle. I appreciate you for trying, it’s all we can do 🫶🏼✨💖