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Tom Kindlon | 1 years ago (raw) | root | parent | reply | flag +1 
 2/

4. Deciding how to respond to “I hope you feel better soon!”

5. Deciding if you’re actually able to do ‘The Thing.’

6. Deciding how much social interaction you can handle.

7. Deciding when to ask for help.

#chronicillness #chroniclife #Spoonielife #Spoonies #Spoonie @3567457b @04c95879 @4183a04c #MyalgicEncephalomyelitis #MEcfs #CFS #PwME @3a447f2a #LongCovid #PwLC #postcovid  #postcovid19 #LC
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Tom Kindlon | 1 years ago (raw) | root | parent | reply | flag 
 3/

"Now that I’m living with #chronicillness, I have to put serious consideration into much of what I choose to do throughout the day because it will have an immediate effect on Current Leslie, as well as risk having an impact on Future Leslie."

#chroniclife #Spoonielife #Spoonie @3567457b @04c95879 @4183a04c @3a447f2a
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Tom Kindlon | 1 years ago (raw) | root | parent | reply | flag 
 4/

"On the days that I decide I don’t have the recovery time or overall energy to take a shower, I give myself a baby wipe bath (which is just wiping myself down with a bunch of baby wipes), apply dry shampoo to my hair, and throw a little cold water on my face."

@3567457b @04c95879 @4183a04c @3a447f2a #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME
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Tom Kindlon | 1 years ago (raw) | root | parent | reply | flag 
 5/

"Spoon delegation isn’t always about the things you have to get done on your task list. Sometimes it’s about making the decision to put those spoons toward an activity you enjoy for your mental health — even if it means you’re going to be a little smelly — that’s what deodorant and body sprays are for!"

@3567457b @04c95879 @4183a04c @3a447f2a #Spoonielife 
#hiddenillness 
#invisibleillness 
#ChronicIllnesses
#Spoonies 
#Spoonie
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Tom Kindlon | 1 years ago (raw) | root | parent | reply | flag 
 6/

"But when those plans involve other people, the stress and guilt felt by having to tell them you don’t feel well enough to participate can be overwhelming."

@3567457b @04c95879 @4183a04c @3a447f2a #ChronicIllnesses
#Spoonies 
#Spoonie
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5e30c378 | 1 years ago (raw) | root | parent | reply | flag 
 @0ecd8d1a @3567457b @04c95879 @4183a04c @3a447f2a did you ever manage to get immunoglobulin therapy Tom?
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Tom Kindlon | 1 years ago (raw) | root | parent | reply | flag 
 @2dbd93a4 @3567457b @04c95879 @4183a04c @3a447f2a No. Never looked for it as would likely be almost impossible to get in Ireland I would imagine.
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allthingsholistic | 5 months ago (raw) | root | parent | reply | flag 
 I am forever classing myself as a separate entity. But you are completely correct. The spoon method is the easiest way of describing. Fortunately, or unfortunately, it’s impossible to understand until you are the one unable to move from your bed, get in the shower/bath, eat.. it’s a daily battle. I appreciate you for trying, it’s all we can do 🫶🏼✨💖