New paper: digital ethnographies for a participatory use of the data space for health care data.
"Patient groups [...] would then be empowered not only to bring their experiences and reflections [...], but also to provide their own accounts of what those experiences and reflections actually mean. In the language of citizen science, they would be not only data collectors, but participants in research design and data analysis."
https://unesdoc.unesco.org/ark:/48223/pf0000384897
#healthcare #ethnography #citizenscience
A profound reflection by @b92dcc07: IPR (copyright) never worked for protecting people's privacy, nor for making sure creative workers are fairly compensated. This is because IPRs are tradeable, and the markets they are traded in are characterized by an extreme concentration of power. What does both jobs is NON-tradeable (inalienable) rights. In other words, we are back to the distinction between human rights (that work) and property rights (that don't). https://doctorow.medium.com/how-to-think-about-scraping-2db6f69a7e3d #economics
Fascinating! It appears that "green growth" is going the way of "smart city": a zombie concept, debunked by the scientific community, but that keeps shuffling about, propped by industry and part of the policy community. Emphasis on "part", since apparently the governments of Scotland, New Zealand, Iceland, Wales, Finland, and Canada—have joined something called the Wellbeing Economy Governments partnership. https://phys.org/news/2023-09-idea-green-growth-traction-climate.html
#ClimateCrisis #degrowth #greengrowth #economics
Macroeconomics is really difficult to do, because you work with aggregates and implicit linearity assumptions which are likely wrong, but it's difficult to know by how much and even in what direction.
Interesting: the panel on climate finance at #NewEconomies agrees that private finance is not delivering. The narrative of "using public finance to de-risk private investments" has basically failed.
Ballpark estimates of financial flows needed for the just transition in 2030:
1. Decarbonization: 4 trillion USD per year.
2. Nature restoration: 0.75 trillion per year.
#NewEconomies
Interesting idea at #NewEconomies : "hospicing the (economic) system". Don't kill it, but isolate it and make space to build a different system. This looks like something from @7c102300's "A Half-Built Garden", with its dual economy.
@8d8ec739@b92dcc07 indeed. That's sort of an ugly compromise. I think Cory is thinking about things life the right to freedom: you have it, but you are not allowed to sell yourself into slavery.
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