New paper: digital ethnographies for a participatory use of the data space for health care data. 
"Patient groups [...] would then be empowered not only to bring their experiences and reflections [...], but also to provide their own accounts of what those experiences and reflections actually mean. In the language of citizen science, they would be not only data collectors, but participants in research design and data analysis."
https://unesdoc.unesco.org/ark:/48223/pf0000384897

#healthcare #ethnography #citizenscience