It's rough.  She's currently trying to get a drug in testing that seems to be actually reversing the condition (at least somewhat).  They have an acquaintance who is already on it and seeing good benefits without negative side effects.  They're hoping to get accepted in the next week or two.

Hopefully it is as good as my Dad says it is.  My Dad doesn't really know anything about health and tends to blindly follow medical authority, so hopefully this new treatment is as safe and effective as he thinks it is.