Oddbean

A way to have all of your health records in one place- that’s portable, private, and selectively shared with those who need to access it- doctors or loved ones (or more socially)… We’re building on the SALUD open source protocol for storing health data on Nostr. This could be simple metrics like height and weight, lab data, prescriptions, etc.

Ah, I see. Do people keep those things themselves? Iean height and weight I just know. The others I don't have records of. This is new to me, I didn't realize thay was a thing. The doctors office would have those. But I don't take any prescriptions, so maybe that's why.

Typically these records are being stored by centralized healthcare software companies (electronic medical records) or providers, prone to hacks and sold off without your consent…. Today this health data system is fragmented yet centralized in walled gardens, whereas nostr can be utilized for “other stuff” eg, health records you want to hodl safely for the long term…

But they will always have this, yes? A doctor will always have it and store it as t XYZ database... Whether I keep it or not. It's been that way for a century. I guess I'm confused on why I would need to keep my own and double up.

Not necessarily. Most hospitals will now delete your data after 7 years, so if you want to go back and get your own data, it’s gone. There are also many countries that have not yet moved to electronic records, where our approach can be a more sovereign way of owning your health data, instead of relying on centralized servers… @illuminodes is doing this in El Salvador for example… This is part of our discovery and understanding who wants to have their own record of their health…

Maybe post a description about the ways in which privacy would be ensured as that seems like the main pain point with sensitive data. Second pain point is (ownership) ease of transmission to third party.