🧵 "Despite Resistance, Policy Makers Push The Paradigm On ME/CFS And Long COVID" by Prof Brian Hughes ( @ee866b0b ), Prof Steven Lubet & David Tuller DrPH https://www.healthaffairs.org/content/forefront/despite-resistance-policy-makers-push-paradigm-me-cfs-and-long-covid @4183a04c #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @3a447f2a #LongCovid #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #GradedExerciseTherapy #GET #cognitivebehaviouraltherapy #CBT 1/ https://assets.disabled.social/media_attachments/files/111/076/442/314/892/591/original/e577d18a556dd283.png
2/ “These assessments highlighted the many key flaws that were endemic in the [GET/CBT/rehab] research, including the confounding of unblinded trials by reliance on solely subjective outcome measures, such as patients’ self-ratings about their health status on questionnaires. This combination of study design features meant that findings were impacted by an unknowable level of bias. (Contd)” #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @4183a04c @3a447f2a