Oddbean new post about | logout
▲ ▼
Tom Kindlon | 1 years ago (raw) | root | parent | reply | flag 
 7/

“(Contd) Ongoing resistance to the paradigm shift only ensures that patients will continue to be offered inadequate & possibly dangerous therapies. Recent reports from patient support groups suggest that many health care services across England are not yet aligned with the new ME/CFS guideline, still offering treatments that are now disfavored”

@4183a04c @3a447f2a #MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #ME #CFSME #CFIDS
#SEID #NeuroME
▲ ▼
Tom Kindlon | 1 years ago (raw) | root | parent | reply | flag 
 8/

“A new NIH institute or center for post-infectious illness is a promising prospect. However, any such initiative is unlikely to happen quickly, & obtaining actionable results would take even longer. In the interim, we believe medical & public health authorities should not wait for the paradigm to shift by itself. Instead, they must push the paradigm & help ensure its onward passage against the forces of resistance & revanchism”

@4183a04c @3a447f2a #MEcfs #CFS #MyalgicE #PwME