ME Research UK:

What is a leaky gut, and how might it affect the immune system and contribute to the symptoms of ME/CFS? A new study explores these questions and deepens our understanding of the immune system and gut in relation to the disease.

 Read more:
https://www.meresearch.org.uk/leaky-gut-and-the-immune-system-in-me-cfs/

nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd #MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome


“Trial By Error: Call for Retraction of Cochrane Review from Science For ME; Overview of Viral Persistence in Long #Covid; (US) Senators United on #LongCovid” by David Tuller DrPH (September 7)

http://surl.li/kxbew

nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd #MEcfs #CFS #MyalgicE #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome nostr:npub18fz872n76uamwc0kkvft8efrxe0zj4xmxqqe6xc55pe9gm6p2s0q9rhy22
#PwLC #PostCovidSyndrome  #postcovid  nostr:npub1zeke3ajwtmsmzm57yg0znem8u9guse37tmx7wz2x29al0xc5xgeqy34d77 nostr:npub1ua6wgn0vpjmh4ep4alvvj0z3hws4ap5yd3txyp6h04xn7atjh4qq25gx9n
#COVIDー19 #COVID19 #COVID_19 #SARSCoV2


Medscape have updated their free CDC-funded CPD course on #MECFS

I never looked in detail at the previous course but this looks quite similar

It can be accessed with free registration.

https://www.medscape.org/viewarticle/995777

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MedEd #CFS #PwME nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd nostr:npub18fz872n76uamwc0kkvft8efrxe0zj4xmxqqe6xc55pe9gm6p2s0q9rhy22
#LongCovid #PwLC #PostCovidSyndrome  #postcovid  #postcovid19 #LC  #MedMastodon

https://assets.disabled.social/media_attachments/files/111/025/235/780/096/932/original/9e94b12ac3fddad6.png


From: Bateman Horne Center
@BatemanHorne

Introducing video 6 of the Post-Exertional Malaise series, Neurobiological Changes

👉 View the entire PEM video series: http://bit.ly/3s4a3us

#PEM #PESE #MERC #MedicalEducation #MillionsMissing nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME  nostr:npub18fz872n76uamwc0kkvft8efrxe0zj4xmxqqe6xc55pe9gm6p2s0q9rhy22
#LongCovid #PwLC #PostCovidSyndrome  #postcovid  #postcovid19 #LC

https://assets.disabled.social/media_attachments/files/111/023/719/902/713/092/original/e43c2abe466e1dc1.mp4


Shared with permission

nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME nostr:npub18fz872n76uamwc0kkvft8efrxe0zj4xmxqqe6xc55pe9gm6p2s0q9rhy22
#LongCovid #Spoonie #Spoonielife #Spoonies nostr:npub1qny4s7gyr3z7t9c8lzjk3qm69mk9nwanknwyznex4l344fp4lmmqkny0sg #chronicillness nostr:npub1x4n527e2rutv77w70tzjqkdw8quhvagcpjyqxump6nv2crfwhdwqx57h77

https://assets.disabled.social/media_attachments/files/111/023/641/048/667/505/original/cae8a3e907fa7e52.jpeg


Full text just released for this from Spain:

Increased gut permeability & bacterial translocation are associated with #fibromyalgia and #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome: implications for disease-related biomarker discovery

https://www.frontiersin.org/articles/10.3389/fimmu.2023.1253121/full

nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd
#MEcfs #CFS #PwME #MyalgicE nostr:npub1pt28y0wfgslmwmru5v7njc8np2njdqhklfx5974y7yexea8um79q7gcd4k #Fibrositis #Fibro #FMS #FM

https://assets.disabled.social/media_attachments/files/111/023/585/656/053/880/original/cc7185a82ae04843.png


9/

MESSAGE FOR OTHERS (contd.)

"Be very gentle with yourself. Be as kind to yourself as you would be to your closest friends if something this devastating happened to them. And remember that your life has value, no matter how constrained it may be. Try your absolute best to hold on."

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd


8/

"MESSAGE FOR OTHERS

If I could speak to every newly diagnosed person, the first thing that I would say to them is that this is not your fault. This is a life-crushing disease, but you did not cause it. There are good researchers working hard to understand this poorly understood disease, and as long as they are doing the work, there is hope. (contd.)"

image via @MEActNet

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd

https://assets.disabled.social/media_attachments/files/111/020/755/144/615/987/original/235d0b1af27a99c0.webp


Transcript: Q2 2023 AIM ImmunoTech Inc Earnings Call (Aug 16)

https://finance.yahoo.com/news/q2-2023-aim-immunotech-inc-040749819.html

This is the company that owns #Ampligen. There is quite a bit of discussion about the ongoing placebo-controlled trial for #postCOVID condition of fatigue #AMP518

#PwLC #PostCovidSyndrome #MEcfs #CFS #PwME nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd #LongCovid nostr:npub18fz872n76uamwc0kkvft8efrxe0zj4xmxqqe6xc55pe9gm6p2s0q9rhy22


3/

9 responses replying to White et al "Anomalies in the review process & interpretation of the evidence in the NICE..." have now been posted to
this including a new one today from @joan_crawford1 that
disappointingly hasn't been posted by JNNP

https://www.s4me.info/threads/no-discussion-e-letters-submitted-to-jnnp-replying-to-white-et-al-anomalies-in-the-review-process-interpretation-of-the-evidence-in-the-nice.34704/#post-489417

nostr:npub1gxp6qn9ehf92pmvy7cl2r5l04vdctls6sr7gn3csf60ap65qdapsr58dpd #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE