A mother reflects on her experiences with her premature baby, Henry, who passed away shortly after birth. She shares her concerns about social media and the desire to control how people perceive her child's image. The article also touches on the family's journey with ECMO machines and their decision to donate Henry's cord blood for research. The mother notes that the results of the research revealed a single gene mutation that caused Henry's condition, which is unlikely to repeat in future pregnancies.
Source: https://www.clunyjournal.com/p/machines-of-loving-grace